Sunday, September 21, 2008
what a great weekend
Friday, September 19, 2008
I'll never understand His plan......
Posted on CarePages 9-19-08 12:00 pm:
"Hello friends, Just another update, I am beginning to not like sitting down to this screen because I seem to post bad news more than good news. Kate and I left Wednesday morning at 3:00 am to head to Houston for a day of chemo, scans and consultation. Our original plans were to have a 3 day trip and take care of all the scans we needed, but hurricane Ike changed that for us by leaving power shortages everywhere, so we had no place to stay. Dr. Anderson wanted to have a chest CT done now and get started on the new chemo. This chemo is an IV infusion lasting 3 hours and it does not make her sick. It can have a side effect of a rash\burn on the palms of your hands and bottom of your feet, so they put hands & feet on ice for the 3 hours you get your chemo - not to the point of frostbite, but uncomfortably cold. We then met with the Dr. to go over scan and were told the cancer continues to metastasize and is now in both lungs with 6 small tumors that we could see. She has 3 on her left and 3 on her right. For the next couple of months we will continue with oral chemo at home and once a month chemo at MD Anderson followed with another chest CT and the MRI and PET scan next month. Kate handled the news just like all the other news, just fine. She is doing out patient therapy 3 times a week and continues to get stronger in the legs but still cannot walk without holding on to something. She is still in a wheelchair and is very independent in it. She is such a blessing to me. It may be hard to imagine how much we laugh together through such crap. We truly enjoy each day. I know this is the love of the Lord shinning through and giving us strength. I will close for now, Kate's calling. Love, Julie"
Monday, September 15, 2008
let's go out to the movies...
Thursday, September 11, 2008
life or something like it
On a brighter note, Kate is doing better. She is home (for now) and is using a wheel chair/walker to get around. The damage is most evident in that she cannot get her legs to go where she wants them to - which I'm sure is terribly frustrating for a 16 year old girl! She did good through the PT, chemo & radiation and managed to keep her spirit strong and disposition happy! The doctors said they will not know how extensive the spinal cord damage is and if this is permanent for possibly up to a year and a half because it is a delicate area of the spine. She is continuing with outpatient therapy at home and will go back to MD Anderson for a new infusion of chemo in about a week. Please continue to keep her in your prayers!
Our anniversary was really nice and low key. We decided to go celebrate on Sunday night (2 days early) and have dinner at the Melting Pot. We picked Sunday because we'd heard that an evening there will take a while. They seated us in a secluded area and even gave us a card that the staff signed wishing us a happy anniversary. Our waiter was phenomenal and we enjoyed our meal, but especially dessert! Banana's Foster fondue - it was incredible!! Neither of us are fans of the cheese fondue, but the Coq Au Vin cooking style for our main course was so delicious!! It was just a wonderful evening all around. Then for our actual anniversary we did Chinese takeout and cuddled up on the couch to watch a movie - it was a perfect anniversary!!
That's about it in my world! My allergies are getting the better of me this week, but other than that no major complaints!